A deep breath and a slab of Bara Brith (with butter)

Thanks to everyone who has sent helpful comments on managing heartburn, weight loss and of course curing autism.  I cannot promise I will try them all.

At risk of sounding like a broken record, I’m uplifted by the hundreds of beautiful comments about I Stand Quietly.  I’ve also read some frankly devastating emails from people about their own struggles.  There aren’t words for how that feels.

Also, seeing as I am only human, I have been suffering some pangs of wistfulness that whilst I know the National Autistic Society will work wonders with the £11,000 and counting, I would give my right arm for a lot less than that to spend on private occupational therapy for my daughter……. still, there’s that outstanding PPI claim…

Not to put an inappropriately light twist on serious things but thank goodness someone saw fit to send me cake.  Oh the power of social media put to REAL GOOD.  A hefty 2lbs of pure emotional eating torture pleasure guilt frenzy.

I shall let the photos tell the story much better than my dribbly-mouthed words could, thank you so much to Mel, the super cool cake baker of, for the generous treat…

No, I can’t be bothered to work out how to turn the last photo around.  I am too busy admiring the annoyingly even distribution of fruit.  And relishing a box-opening experience that Apple would be proud of… Oh, and eating another butter-laden slab.  You can’t believe I covered it in butter?  Blame Mel, it was her idea.

If you want your own fix of hearty Welsh distraction and solace, buy it here.

Always good to spot that the ever helpful auto-correct changes barabrith to barbarity before you hit publish.  That wouldn’t have read so well.  Of course, had I spelled it correctly in the first place, I wouldn’t have learned that.  But then I wouldn’t have had this lame almost funny final paragraph either.

13 thoughts on “A deep breath and a slab of Bara Brith (with butter)

  1. I found your blog through your beautiful post “I sit quietly” it brought me to tears. I remember so much of that it was as if you were remembering my life. My eldest son (now 18) has an ASD he also has ADHD. He as a younger child never sat still, ever. Nothing was how it “should” be in the parenting books. He even quite seriously injured his younger siblings more than once doing something on impulse he thought would be fun or funny. But oh how I loved and love him and that was enough, that brought us through. Of course he still has ASD and adhd. He won’t be ready to leave home at the same time as his peers, he needs extra support. But for me it did get easier or at least different. He is now taking a levels and has a real life girlfriend like not on the x box an actual person. You are doing awesome, you are an awesome mother and I send you bundles of love xxx

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  2. Found your beautiful open letter via huffpost. I know nothing of what you are going through but you’re doing an amazing job. Cope however you need to cope. And cake helps everything!

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  3. Every child is unique and every child with ASD is as unique. There are so many facets that are misunderstood. Imagine if everyone with an ASD child who read your poem wrote a single “I stand/sit/lay” verse highlighting just one moment… How long would the poem get and how many opportunities for understanding would there be?

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  4. you are amazing! Your daughter sounds wonderful. Wolf girl around waitrose made me laugh out loud. Your writing is very engaging and quite addictive.
    I truly hope things get better and easier for you both.
    Kind regards,
    Katie.

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  5. Hey there, I came here from your beautiful open letter in Huffpost. Amazing work.

    I just wanted to comment to say that I did a PPI reclaim a couple of years ago and got over £8k back, it took me less than an hour to do. Don’t use any of these stupid “we’ll claim it for you” firms, they’re a bunch of gougers. There’s a good template letter and guide on MoneySavingExpert.

    Good luck to you!

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  6. Have you heard of Carly? I really enjoyed this book written by her father and her.

    How old was your daugther when you knew she had autism?

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    1. To be horribly honest, I have not read about anyone else’s experiences of autism… I actually dislike reading other than gardening books and the odd recipe!!!!! I’m more of a doer/schemer than a sitter.

      I was unsure my daughter had autism right up until the diagnosis (which was only last summer) and sometimes waver even now… or maybe that’s wishful thinking. For a long time I believed she only had Sensory Processing Disorder (and so did many specialists) combined with a touch of eccentric genius (LOL!)… she is so bright for her age that compared to her peers her intelligence cancels out a lot of the traits that you might spot as autistic… it’s only now she’s seven and certain things ALL her peers have grown out of, that it’s becoming more and more apparent. xxx

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